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SOAR-NPC

SOAR-NPC is a group of family foundations and scientists, with an extensive network of collaborators.

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  • What is NPC?
  • About SOAR-NPC
  • Resources
  • Research
  • Donate
  • Contact

Press Coverage

Andrews Family

May 16, 2017 by SOAR- NPC

Inside One Family’s Fight to Save Daughters Who Both Have ‘Childhood Alzheimer’s’: ‘We Will Not Let Them Die’    Read More

Filed Under: Press Coverage

Penn Vet Researchers Identify Effective Treatment for Niemann Pick Type C

April 26, 2017 by SOAR- NPC

Niemann Pick Disease type C, or NPC, is a disease most people have never heard of, affecting just one person in 150,000. Yet the disease is a devastating one. Frequently diagnosed in children in their elementary school years, sufferers usually die by the time they’re 20. The disease is sometimes referred to as “childhood Alzheimer’s”… Read More

Filed Under: Press Coverage

RARECast Interview

April 17, 2017 by Jonathan Jacoby

Filed Under: Press Coverage

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